NBC’s Richard Engel’s son dies after living with genetic disorder

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NBC News foreign correspondent Richard Engel announced that his 6-year-old son, Henry, has died.

Henry was diagnosed with Rett Syndrome in 2017 and died Aug. 9, 2022, though Engel did not make the announcement until Aug. 18, 2022.

“Our beloved son Henry passed away. He had the softest blue eyes, an easy smile and a contagious giggle. We always surrounded him with love and he returned it, and so much more,” Engel tweeted along with a photo of Henry and a link to a memorial page.

Rett syndrome is a genetic disorder without a cure. It’s not uncommon for those living with it to die at younger ages, though some do live until middle-age.

It can affect a person’s ability to walk and cause seizures, difficulty walking and smaller head size.

Rett syndrome occurs more commonly in girls and many boys born with the condition die shortly after birth.

Engel has been married to Mary Forrest since 2015. They have another son, Theodore, born in 2019, who survives.